File #: 24-522    Version: 1 Name:
Type: Action Item Status: Agenda Ready
File created: 5/1/2024 In control: BOARD OF SUPERVISORS
On agenda: 5/14/2024 Final action:
Title: Adopt Proclamation Designating May 4 - 11, 2024 as National Osteogenesis Imperfecta (OI) Awareness Week in Lake County
Sponsors: Michael Green
Attachments: 1. National Osteogenesis Imperfecta Week_May 2024
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Memorandum

 

 

Date:                                          May 14, 2024

 

To:                                          The Honorable Lake County Board of Supervisors

 

From:                                          Michael Green, District 4 Supervisor

 

Subject:                     Adopt Proclamation Designating May 4-11, 2024, as National Osteogenesis Imperfecta (OI) Awareness Week in Lake County

 

Executive Summary: Adopt Proclamation Designating May 4-11, 2024, as National Osteogenesis Imperfecta (OI) Awareness Week in Lake County

 

WHEREAS, Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person born with OI is affected throughout his or her lifetime; and

WHEREAS, there are many different types of OI with symptoms that range from mild to life-threatening, with variable clinical features such as fracture frequency, muscle strength or extra-skeletal problems affecting vision, hearing or other body organs and functions; and

WHEREAS, because there is no cure for OI, treatment focuses on minimizing fractures, the surgical correction of deformity, reducing bone fragility, maximizing mobility and independent function; and

WHEREAS, it is estimated that approximately 25,000 to 50,000 people in the United States have OI and with good medical treatment and supportive care, the majority of people will lead healthy, productive lives with an average lifespan; and

WHEREAS, increased funding is needed for education and research to help find more effective treatments; and

WHEREAS, the Osteogenesis Imperfecta Foundation, a voluntary national health organization, strives to improve the quality of life for people with Osteogenesis Imperfecta by increasing awareness of this rare disease among the public, media, government, and medical communities.

 

NOW, THEREFORE, BE IT PROCLAIMED, that the Lake County Board of Supervisors does hereby designate May 4-11, 2024, as National Osteogenesis Imperfecta (OI) Awareness Week in Lake County.

 

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Recommended Action:  Adopt Proclamation Designating May 4-11, 2024, as National Osteogenesis Imperfecta (OI) Awareness Week in Lake County